My Demented Mom

5 million Americans suffer from Dementia. My mom is one of them. A site for young adult caregivers struggling and coping with "the long goodbye."

There Are NO Alzheimer’s or Dementia Survivors. None. Zero. Zip. Nil. That’s a Problem.

May 19, 2013

Call me bitter, heck, even disgustingly angry; but when I saw this story on my Facebook news feed, then later listened to a report about the study on NPR’s Morning Edition, I rolled my eyes and thought, “Well, DUH!” Caregivers are MORE than aware of the ridiculous costs associated with this dementia care — financially, […]

During President Barack Obama’s State of the Union address last Tuesday, he did something pretty remarkable……………………….. he mentioned Alzheimer’s disease in his speech. That was the first time a president has mentioned Alzheimer’s in his #SOTU in 13 years. 13 YEARS! That’s a lot of years to be quite on this issue. “Today, our scientists […]

As I write this blog, I’m trolling Twitter. Just seeing what’s out there in the way of caregiver support, resources, news, etc, etc, etc. Turns out, there’s a lot shaking in our world. A quick scroll on my feed shows Tweets about everything from incontinence and nursing homes to tips on how to be an […]

This is a controversial matter……. I don’t even know what to say about it……….. my mother is on antipsychotics that were given to her by a trained psychiatrist to “stabilize” her during her month-long stay at a geriatric psych unit. They do this……….. stabilizing…………… because many facilities (even the “memory care” units) won’t accept behavioral […]

There’s been a lot of stories in the news this week about NAPA and a push to find a cure for Alzheimer’s disease by 2025. USA Today had an article entitled, U.S. Launches National War on Alzheimer’s. Well, we’ve seen what happens when America goes to war. I absolutely applaud the push towards massive action […]

Found through one of my Twitter peeps. Shocking. Sad. Grotesque. From TIME Magazine: An Alzheimer’s diagnosis is a terrifying sentence: a slow deterioration of the mind that entwines a loss of self and life—a misery for both the sufferer and his or her family. More than half of all Americans now know someone with Alzheimer’s; […]

Interesting read about the latest news to emerge regarding the possible detection of Alzheimer’s…….. At first I was stoked, now I’m concerned about misdiagnosis and the pain one has to endure just to learn if they have one of the most horrific diseases possible—and with no cure at their disposal or medications that actually do […]

Ten other nations have Alzheimer plans. More than half of our states are working on plans. But the federal government has no plan at all. Taken from an article that appeared in the Huffington Post By Harry Johns, President and CEO of the Alzheimer’s Association A new report released this week by the Alzheimer’s Association […]

Random morning, pre-work thought……….. in Arizona, we’re going back and forth about SB1070, a bill that would allow law enforcement to ask an individual for his or her documents proving that he or she should be in the country LEGALLY. A big brewhaha. But this got me thinking…… as people fret over the bill and […]

Originally appeared in and written by Kate Mulgrew. Ms. Mulgrew a stage, film and television actress who is best known for her TV role in “Star Trek: Voyager.” She is currently appearing in the NBC series “Mercy.” BELOW IS AN EXCERPT OF HER STORY, HER HOPES…. APPEARED ON CNN,COM: After the Alzheimer’s came, my […]

I have to share this piece which appeared in The New York Times a while ago, but it’s a striking piece about Alzheimer’s disease and the future of our country. Zen and the Art of Coping With Alzheimer’s By DENISE GRADY During the YouTube forum with the Democratic presidential candidates in July, the first question […]


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