My Demented Mom

5 million Americans suffer from Dementia. My mom is one of them. A site for young adult caregivers struggling and coping with "the long goodbye."

Family Caregiver Award Winner – Kathy Ritchie (Primary Caregiver for her mother, a resident of Beatitudes Campus, Phoenix, AZ)The Exceptional Friend or Family Caregiver Award recognizes an individual who has demonstrated outstanding compassion and abilities in one-on-one caregiving for a friend or family member living with dementia. Unfortunately, I was unable to attend the event in […]

This week’s New Yorker magazine features a fantastic article by Rebecca Mead called, The Sense of an Ending. I encourage you to read this article, which talks about innovative ways to care for people living with dementia. The star of this story is Tena Alonzo, the director of education and research at the Beatitudes Campus […]

1. Alzheimer’s disease is the sixth leading cause of death in the United States. 2. More than 5 million Americans are living with the disease (I’m guessing this figure does not include Americans living with other types of dementias like FTD). 3. 1 in 3 seniors dies with Alzheimer’s or another dementia. 4. In 2012, 15.4 million caregivers provided […]

During President Barack Obama’s State of the Union address last Tuesday, he did something pretty remarkable……………………….. he mentioned Alzheimer’s disease in his speech. That was the first time a president has mentioned Alzheimer’s in his #SOTU in 13 years. 13 YEARS! That’s a lot of years to be quite on this issue. “Today, our scientists […]

Alzheimer’s Registry Aims to Wipe Out Disease Originally from AARP Blog and posted by Sally Abrahms What if you could play a part in preventing Alzheimer’s disease? Maybe you can. The Phoenix-based Banner Alzheimer’s Institute (BAI) has established an online registry for those at risk of developing a disease affecting more than 5.4 million Americans. Many signing on are adult sons and […]

My brother has been caring for her but I think it’s now my turn By Cary Tennis Dear Cary, When my mom first was showing signs of dementia I was adamant that “something must be done” as I got married, started a new career, and quickly had two small children. Naturally, what I did was […]

If you’re reading this blog because you have a parent dying from Frontotemporal dementia, I have bad news: things are going to get worse. That is a fact. No point in sugar coating the truth, right? There is no happy ending, no light at the end of the tunnel (unless you accept death as light), […]

A MUST, MUST, MUST read that appeared in New York Magazine by Michael Wolff On the way to visit my mother one recent rainy afternoon, I stopped in, after quite some constant prodding, to see my insurance salesman. He was pressing his efforts to sell me a long-term-care policy with a pitch about how much […]

This is a controversial matter……. I don’t even know what to say about it……….. my mother is on antipsychotics that were given to her by a trained psychiatrist to “stabilize” her during her month-long stay at a geriatric psych unit. They do this……….. stabilizing…………… because many facilities (even the “memory care” units) won’t accept behavioral […]

Mother’s Day is an awkward holiday. I say awkward because while I understand why we make such a fuss about this day, I can’t help but find it to be somewhat, well, insensitive — to put it bluntly, Mother’s Day is another reminder of what I, and others like me, don’t have. My mother is […]

An article, which appeared in The New York Times, about a wife and her husband who has Frontotemporal dementia really hit home with me……. I wish this article came out five or six years ago…… For me, reading this, well, I felt some comfort………… like when they talked about shoplifting …………… knowing that it wasn’t my […]

I’ve known Suzette Armijo  for over a year now…. we met through the Alzheimer’s Association and YAAA! or Young Adults for Alzheimer’s Awareness…. Suzette is the primary caregiver for her grandmother who has Alzheimer’s. She’s also the mother of a sweet little boy and she works full-time…. this girl has her hands full, but she […]

I’ve never met Howard. I was “introduced” to Howard via a Facebook support group for kids whose parents have Frontotemporal dementia (Pick’s disease) or other early-onset dementias…. Howard has an interesting story to tell……. he actually knows he’s dying from Frontotemporal dementia. Howard’s mission is to tell his story and now he and others are […]

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