My Demented Mom

5 million Americans suffer from Dementia. My mom is one of them. A site for young adult caregivers struggling and coping with "the long goodbye."

The sky started rumbling. A storm was coming in from the north. There was wind, thunder and lightening. I hoped it would rain. But it never rains anymore. Then I thought about my mom. I wondered if God was coming for her and this was his grand entrance. As I stood over my kitchen sink washing baby bottles, […]

I’m still coming to terms with the idea that my mom is dying. It hardly seems possible. I mean, I knew, eventually, she would die. But death felt faraway. It still feels far away. If she is dying, it’ll take time. My mom was in OK shape, physically, before her sudden decline; she was decently hydrated, […]

My interview with Max Wallack, founder of Puzzles To Remember, an organization that provides puzzles to nursing homes that care for Alzheimer’s and dementia patients, proves that no matter how old you are, you can make a huge difference in the fight against Alzheimer’s disease and dementias. Wallack first witnessed the devastating effects of Alzheimer’s disease when […]

It’s World Alzheimer’s Month. I hope you watch this video. Share this video. Tweet this video. Facebook this video. Tell people about this video. If you’ve been touched by Alzheimer’s disease or any other dementia, consider it your responsibility to spread the word. Make people aware. It starts with YOU.

1. Alzheimer’s disease is the sixth leading cause of death in the United States. 2. More than 5 million Americans are living with the disease (I’m guessing this figure does not include Americans living with other types of dementias like FTD). 3. 1 in 3 seniors dies with Alzheimer’s or another dementia. 4. In 2012, 15.4 million caregivers provided […]

1. Diminish distractions. 2. Converse one-on-one. 3. Keep things simple. 4. Avoid arguments (this should be number 1). 5. Just keep talking. I would also like to add: 6. Walk in their shoes. 7. Step into their world and speak their “language” (even if it makes no sense………………… my mom was only able to articulate […]

It was around 8pm last night when I started watching some of the videos I had taken of my mom. In the more recent ones, she is yelling — a lot. That’s all she can do. She can’t talk. I take these videos because, I feel like people don’t believe me when I say, ‘I […]

As I write this blog, I’m trolling Twitter. Just seeing what’s out there in the way of caregiver support, resources, news, etc, etc, etc. Turns out, there’s a lot shaking in our world. A quick scroll on my feed shows Tweets about everything from incontinence and nursing homes to tips on how to be an […]

When I walked into the front door of my mother’s home, a little over two weeks had past since my last visit. Because of the influenza epidemic that turned Arizona bright red on the “flu view” map of the U.S., the home issued an edict banning practically all visits until it subsided. They told me that […]

I stumbled upon Susan Spencer-Wendel’s soon-to-be released book, Until I Say Good-Bye: My Year of Living with Joy early this morning. I haven’t read it yet. It doesn’t come out until next March. Still, I wanted to share because I think we’re going to be hearing a lot more about Spencer-Wendel and her tremendously touching memoir in the coming […]

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