I don’t really know what to say at this point. The thing is, I still have a lot to say. I want to tell our story. I have to. I need to keep going because, well, what else am I going to do? Sit back quietly and wait for this thing to attack my brain? Um,… Read More A New Chapter… Life After Death & Dementia
The sky started rumbling. A storm was coming in from the north. There was wind, thunder and lightening. I hoped it would rain. But it never rains anymore. Then I thought about my mom. I wondered if God was coming for her and this was his grand entrance. As I stood over my kitchen sink washing baby bottles,… Read More They Keep Saying She’s Dying … Or Waiting Around for Death
I’m still coming to terms with the idea that my mom is dying. It hardly seems possible. I mean, I knew, eventually, she would die. But death felt faraway. It still feels far away. If she is dying, it’ll take time. My mom was in OK shape, physically, before her sudden decline; she was decently hydrated,… Read More Hey God, She’s Dying. Where Are You?
It was 7:30p.m. last Thursday when I called my mom’s doctor. “I think she’s dying,” she said. I was sort of stunned. I’ve been waiting to hear these words for a very long time. I don’t remember exactly what came out of my mouth. At that point, my mom hadn’t eaten for three days. She had… Read More So, She’s Dying
It’s World Alzheimer’s Month. I hope you watch this video. Share this video. Tweet this video. Facebook this video. Tell people about this video. If you’ve been touched by Alzheimer’s disease or any other dementia, consider it your responsibility to spread the word. Make people aware. It starts with YOU.
1. Alzheimer’s disease is the sixth leading cause of death in the United States. 2. More than 5 million Americans are living with the disease (I’m guessing this figure does not include Americans living with other types of dementias like FTD). 3. 1 in 3 seniors dies with Alzheimer’s or another dementia. 4. In 2012, 15.4 million caregivers provided… Read More 6 Reasons You Should be Scared of Alzheimer’s & Other Dementias
A fantastically touching interview worth watching about early-onset Alzheimer’s disease. Award-winning CBS News Correspondent Barry Petersen talks about his book, Jan’s Story: Love lost to the long goodbye of Alzheimer’s, based on his journey with his wife Jan. Petersen talks about the changes in his wife’s personality, which started as early as 40, the reaction of family… Read More Jan’s Story: Love Lost to the Long Goodbye of Alzheimer’s
1. Diminish distractions. 2. Converse one-on-one. 3. Keep things simple. 4. Avoid arguments (this should be number 1). 5. Just keep talking. I would also like to add: 6. Walk in their shoes. 7. Step into their world and speak their “language” (even if it makes no sense………………… my mom was only able to articulate… Read More 5 Tips for Talking to Someone With Alzheimer’s Disease
It was around 8pm last night when I started watching some of the videos I had taken of my mom. In the more recent ones, she is yelling — a lot. That’s all she can do. She can’t talk. I take these videos because, I feel like people don’t believe me when I say, ‘I… Read More Benjamin Button Effect: What Do You Do When Your Mom Cries Out Like a Baby?
As I write this blog, I’m trolling Twitter. Just seeing what’s out there in the way of caregiver support, resources, news, etc, etc, etc. Turns out, there’s a lot shaking in our world. A quick scroll on my feed shows Tweets about everything from incontinence and nursing homes to tips on how to be an… Read More We’re Young, We’re Poor, & We Need a Cure. Our Lives Depend on It
We held hands and she fell asleep. Sometimes, all it takes is touch… a touch that lets you know, you’re not alone on this journey.